Lunch with Phil

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One Stop Coney Shop, a few blocks from Hope Lodge!  Pretty decent. great fries!

Nice find, Phil!  Wishing you lots of positiveness this week!

 

 

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Day 4

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Treatment machine broke down for a while. I don’t get done till 5 o’clock.  Just glad I got another blast in today.

Dr. Chen  tomorrow AM.  Ginny to pick me up and get me outta here tomorrow after one more round. 🤖

 

Day 1

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I don’t look or feel anything like the picture Barb posted of me.

Treatment EZ , just lay there still.

Checked in and settled in my room. Church ladies made a community supper. Chicken pasty puff pockets and green marshmallow salad. Very Lutheran.

 

Day One

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IMG_2483.JPGFirst stop was Lack’s Cancer Center for round one of ten treatments of radiation. The treatment was pretty uneventful.  Fifteen minutes in and out.  The above picture is the radiation machine they will be using for his treatments.

left Lack’s and went a block down the street to Hope Lodge and got him checked in. Nice place.  I think he will be fine staying there all week.  A group was coming in tonight to cook dinner for thenpeople,staying there.

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I asked Phil to update this blog the rest of this week….so,we’ll see how this goes!

Stay strong Phil!  Team Chmura is cheering you on! ❤️❤️❤️❤️❤️

 

Friday 12/16 Update

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Maggie and Phil traveled to Grand Rapids today.  I stayed behind..took Grandma to her hair appointment and we went to the bank.

Phil’s appointment was pretty quick.  In and out in 45 minutes.  They made his mask mold, Dr. Kane came in, said hello and told Phil he was working on his treatment targets.  They setup Phil’s schedule for treatmemts.  His first treatmemt will be this Monday at 1:30.  He will had five consecutive treatments Monday through Friday.  He will check into Hope Lodge Monday after his treatment and leave there on Friday.  He will check back in on Tuesday after Christmas and be there that week.  Last treatmemt the following Tuesday.

Phil and Maggie were picking up Famous Recipe chicken for supper and going to Granny’s for dinner.  After dinner Phil was going to have Mom/Grandma listen to the recorded visit with Dr. KAne.  If you’d like to hear it, give Phil a shout and he will send it to you…pretty interesting stuff.

Snowing pretty consistently here.  Predicted to do so all weekend.

Keep sending positive energy to our brother, uncle, son and pal!

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Phil

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As many of you are aware, Phil has been diagnosed with Stage IV brain cancer.  He has melanoma, which is likely from a tumor he had removed 24 years ago. The cancer is also present in his lung and liver.

He has chosen Lack’s Cancer Center in Grand Rapids for his treatment.  He has met with Dr. Chen, medical oncologist.  Dr. Chen has recommended radiation therapy for his brain tumors first.  Once that is completed, he will initiate treatment for the liver and lung.  Either immunotherapy or oral medication will most likely be the treatmemt modality for those areas.

we met with Dr. Kane, Radiation Oncologist today.  Phil felt very comfortable with him.  Dr. Kane explained the whole radiation process to us, as well as what to expect as far as side effects and outcomes of treatment.  Phil will received ten treatments.  Five days a week for two weeks.  Side effects will be fatigue, he will lose his hair, and itchy skin on his head and perhaps slight headaches.  His treatmemts will be five minutes each of intense radiation to his full head.  Tomorrow he is being fitted for a mask …it will be molded to his head/face. He will wear this for his treatmemts to prevent burning of his skin and to keep movememt non-existent.  We anticipate his treatmemts to begin next week.

The treatmemt team appears to be extremely knowledgeable and they certainly have their act together.  Phil will be staying at Hope Lodge,(a housing facility funded by the American Cancer Society) for the duration of his treatment.  It is located a block from the hospital.  They will provide him with transportation, meals, lodging, etc for the 10 days of treatmemt.

Phil is feeling good at this point.  He has confidence in this team of caregivers and is ready to get things rolling.  I am going to encourage him to write on this blog during his stay in Grand Rapids.  It hopefully will keep up us in the loop of how things are going for him.

please feel free to write comments or questions so everyone is on the same page.  I am sending this to all family members so please bookmark and watch for updates.

Join me in thinking positive thoughts for Phil, sending good energy his way and wishing him strength as he embarks on this journey

wishing you all good things along this path, Phil..love the middle sister!

Love Barbie

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